Monday, July 27, 2009

Enjoy your day.



Have a Terrific Tuesday! It is late and I must rest,may my dreams be gentler than my day!....As always a good night sleep can change my whole outlook on life, love and living. They say that there are so many people out there that are sleep deprived. I know as soon as I am starting to get a little grumpy that it is time for bed. Having severe cataplexy with a variant of Narcolepsy I have to be especially careful...After a rest I awake after wearing my Cpap manchine as if I could fly to the moon. This feeling only lasts about 2 hours, so that is when I do any of my daily tasks. I usually cook in the morning as I know there is a good chance later in the day that I will not have the energy. Example yesterday my husband had the day off, I needed to go get ink for my printer, and wanted to stop at the Jysk store as they had a big sale on summer stuff, so I thought I could just go look around. We went to Staples and that was the end of my shopping....So I guess the positive thing is I never spend alot of money,I then had to rest, he went and got groceries, and then we had about 3 hours together in the evening.He went and played ball and I did a few things here. ....I have a sign in my room that says, Sometimes I wake up grumpy, other times I let him sleep. Ocassionally there will be a sticky note over him and it has been changed to her. His sense of humour is great. Once in a while I might have more energy and I take it, trust me. I am off to ride my bicycle for about 3 blocks....does not sound like much...to me it is a huge milestone as in 2 hours I won't be able to until tomorrow morning again. It is a silly condition, forced to slow down before I ever wanted to be.....but the flowers smell damn fine.

11 comments:

  1. A terrific Tuesday is being had - thank you!

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  2. hope you have a beautiful day

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  3. Cinner:
    Well, you know my wish for you is that all of it be as good as you are...there's no way it should be any other sort. Sweet dreams & happy days.

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  4. Thanks Holly, Have a great Tuesday my friend!

    Char, I will i had a great rest always changes my outlook. Take care, I am coming for a visit.

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  5. I know what you mean about how much better a day I have when I get some sleep. I am used to it now.
    Hope you enjoy your day.

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  6. I can't imagine what you have to deal with on a daily basis....but your positive attitude is everything !!

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  7. I sat here really trying to FEEL what it must be like to have to work so intimately within your own energy framework ... and oddly, I didn't sense a lot of frustration because what I get from you, when you describe it, is at lesat a suggestion (within the frustration) of different ways of welcoming it or embracing it ... and using humor like a color wash on it. I'm sure you don't always deal well with it but you have developed mechanisms that can't just be lumped into that 'coping' phrase but seem more uplifting than that.

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  8. I have to be positive when there are so many others out there that are so much worse off, I am okay with changes. Some don't get that opportunity so I am actually very lucky. Some days I can have a bad day about it, but that does not change things either. The lack of energy is frustrating as I was always on the go before....now I just go at different things.Sorry its nap time I am ramblin. Have a great day, Toni and Beth, thankyou for such positive feedback. I don't like to complain about it, I don't want to be a whiner!Have a great day.

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  9. I hope you had a wonderful rest. : ) I send a beautiful breeze and sweet dreams.
    xo

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  10. Your a darling Christina, I hope it is a breeze from the ocean.

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  11. Always good to smell the flowers...

    Slainte, Lady!

    Cygnus

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